The mission of The Cystic Fibrosis Foundation –
a donor-supported, nonprofit organization – is to assure the development of the means to cure and control cystic fibrosis (CF)
and to improve the quality of life for those with the disease.
Never in the history of Cystic Fibrosis Foundation have our opportunities for curing this disease been as great as they are today. And, with almost 90 cents of every dollar raised going straight to research, it is no wonder that SmartMoney Magazine, the magazine of the Wall Street Journal, picked the Cystic Fibrosis Foundation as one of the nation’s Top Ten “Charities You Can Trust” in 2000.
About Cystic Fibrosis
Cystic Fibrosis (CF) is a life-threatening genetic disease affecting approximately 30,000 people in the United States. For people with the disease, a defective gene causes the body to produce a faulty protein that leads to abnormally thick, sticky mucus that clogs the lungs and can result in fatal lung infections. The mucus also obstructs the pancreas, causing difficulty for a person to absorb nutrients in food and can block the bile duct in the liver, eventually causing permanent damage in approximately six percent of people with CF.
One in thirty-one Americans is an unknown symptomless carrier of the CF gene.
In 1955, children with CF usually did not live long enough to attend elementary school. Today, according to the CF Foundation’s National Patient Registry, the median age of survival for people with CF is in the late 30s and more than 40 percent of the CF population is age 18 and older. Many people with CF are living into their 30s, 40s, 50s and beyond. In the last four years alone, more than five years have been added to the median survival age of CF patients.
Your support of Shimmy-a-thon will transform this event into a way to find a cure and help the people and families suffering with this disease live a more productive and full life.
To find out more about Cystic Fibrosis, visit www.cff.org
To learn about Shimmy-a-thon, click here